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Every penny matters
Every step counts
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Were you inspired by the London 2012 Paralympics? The heroic feats of courage and determination by the disabled atheletes in the face of seemingly insurmountable odds thrown at them by the unfair lottery of life. So was seven year old Jonny Maberley, born with spastic Cerebral Palsy and used to living life as a quadreplegic securely strapped into a wheelchair. Until now ...
Thanks to everyone who has so generously supported the Jonny's Journey campaign since we launched it in December 2011, Jonny was able to have his life changing SDR (Selective Dorsal Rhizotomy) operation at St Louis Children's Hospital in America in October 2012. He's now able to move and use his body in ways he and his parents never thought possible, including walking for the first time with the support of a reverse Kaye walker. If you visit Jonny's Facebook page you can watch a video of him practicing his walking with his Dad Gareth.
Since the SDR op Jonny has told his Mum and Dad, Katie and Gareth Maberley, "I want to be an Olympic Champion!" And his post op physiotherapy schedule is certainly worthy of any Olympic champion. Jonny doesn't think of it as physio though, rather training, working out or exercising - just like most of us do. With the amount of determination and courage Jonny’s shown so far he certainly has what it takes to be a future Paralympic Champion in 2024 or beyond!
We still need to raise the final £10,000 to pay for at least a twelve month programme of intensive, specialist physiotherapy for Jonny and every penny you can donate will contribute directly to helping Jonny's dreams come true. So if you enjoyed a 'feel good' factor watching the GB Paralympic team success last year then turn it into a 'do good' deed and support Jonny Maberley ... he could just be a future Paralympic champion!
Whilst Jonny now dreams of being an Olympic champion, not long ago his dreams were of having a life changing operation in America - one which is still not readily available or resourced on the NHS. Jonny’s Selective Dorsal Rhizotomy (SDR for short) operation took place on Tuesday 2nd October and was performed by Dr T S Park, Neurosurgeon in Chief at St Louis Children’s Hospital and widely recognised as the world’s number one in this field. Dr Park has pioneered and refined this complex spinal neuro-surgery, performing over 2,400 operations with no major complications over the last twenty four years. So Jonny was in very good hands!
Dr Park said, ‘Jonny shows the same typical signs of spastic quadriplegia as many other children who have benefited greatly from the Selective Dorsal Rhizotomy. We have seen consistent improvement in children very similar to him. The permanent reduction in abnormal muscle tone will help him significantly.’
Jonny already feels much more comfortable since the op and no longer needs a knee brace whilst sitting in his wheelchair. An intensive program of post operative physiotherapy has enabled him to take his first ever steps using a reverse walker to provide support. This is just such an amazing result for Jonny who, as a quadriplegic Cerebral Palsy sufferer has been severely disabled by the condition and spent most of his young life so far strapped into a wheel chair. He's even done a bit of Gangnam style body bopping!
Thank you to everyone who has made such a wonderful difference to Jonny's life. Thank you for walking beside him and being his friend. It is more appreciated by Jonny
and those who love him than you'll ever know. We can only wish that you receive the same wonderful friendship and support for whatever challenges your own life journey brings.
Jonny's Journey operates under the registered charity Orleans Primary PTA (previously Friends of Orleans Infant School) - registered charity number 1047600.